Showing posts with label hair loss. Show all posts
Showing posts with label hair loss. Show all posts

Sunday, September 15, 2013

New Beginnings and the Chaos that follows

So it's been a crazy, crazy month.  Our visit with Kevin ended so sweet and peaceful  We had such a great day with him the next day.....it was much different than the day before with the key incident.  I finally received this picture in the mail from Kevin.  It was taken shortly before we left on Sunday afternoon.

Everyone keeps asking how he is....and well on average I'd say he's great considering the circumstances.  I mean he has bad days....and those honestly tend to correlate with the days that he is unable to work out.  That has become a big part of his life there.  It's how he releases frustration as well as builds relationships with other guys there.  Not to mention he's lost close to 20 lbs in 6 weeks.  Turns out that working out actually helps you lose weight......especially if you do it 2-4 hours a day in the blazing texas heat! Amazing right?  When he walked in on Saturday I remember thinking, "Man, he looks hot."  Anyone who's been married for over 5 years can understand that's not something women think about their spouses on a daily basis.  He's moved from a dorm unit into 2 man cells which he loves.  He can pray and study and read in peace.  Only catch is there is no air conditioning!  Yeah the average temperature this month has been eh around 98 or so.  Yeah um NO THANK YOU!  But Kevin never complains.  He's just grateful for the quiet.  It reminds me of this praise song I love and it says, "You are stillness, You are quiet, you are comfort and peace."  In the stillness and quiet, it's easier for him to get in God's presence, even if it's Texas hot!  

It's been a month of firsts for us.  We came home and had to get ready for the first day of school.  My baby started Kindergarten this year.  I have to say,  I pictured this day much different.  I've been dreading it since the day he was born.  I expected to drop him off and make it just outside of the building and be able to turn into Kevin's arms and completely fall apart.  But that is obviously not what happened.  The morning of I was completely prepared....which is so unlike me :)  

teacher gifts...check

hot breakfast.......check



1st day of school notes ........ check

We got ready to go and right as we're getting ready to pray (which is something we do everyday before school) the phone rang and my heart seriously lept.  All I wanted was for the kids to be able to talk to Kevin before they went to school.

This picture still brings tears to my eyes.  Kevin was able to talk to them and pray over them.  And there was nothing I wanted more than that.  So then we did what every family does on the first day of school....we took a ridiculous amount of pictures!











And then it was time.....it was time for me to walk out of an elementary school without a baby, toddler, or preschooler.  I teared up walking down the hall, but then I realized this is a new beginning.  We are entering a new stage of life and this is just one step closer to Kevin coming home.  We had plenty of breaking down lately and now it was time to stand up.  I went into the "tears and cheers" breakfast for the kinder parents, where I sat with my friend Jenny who had just buried her sister (who battled breast cancer) the day before.  Oh yeah wait....what was I crying for again?  I forgot.  Afterwards I walked out and got in my car and realized it was the first time I'd been alone since Aug 5. (except for a dentist appointment where I had about 10 minutes alone driving.) and I sat there and soaked in it for a while......then it was time for interviews.  Yup I had 5 interviews scheduled and you want to know how amazing God is???  I never sent out one resume.  Or even made one phone call for that matter.  It just so happened that I had 5 different companies try to recruit me right at the time that I needed a job.  That is the favor of God right there.....there's no other way around it.

My baby boy also started t-ball this month.  And as hard as it is to not have Kevin here to coach him, by the grace of God we were placed on a team with some amazing Godly men.   And I couldn't be more grateful for that.  In fact, I prayed for it!  And of course because life has become insanely crazy I decided to volunteer to be team mom!!!  I've concluded that the key to making time pass by quickly is to stay busy.  And I am completely in love with watching a bunch of 5 years olds attempt to play baseball.  It just makes my heart happy.  I mean how can you resist this??




Oh and then the first game.......I am seriously in love!  Look at this face!  How can you not love him??











We also got to meet my cousin's new baby and say goodbye to him.. He is our real life hero and is leaving on his first deployment in the next few days.  Prayers for safety for him and peace for his family would be much appreciated!



So after all the piano lessons. gymnastics classes, t-ball practices and games, homework, room-mom meetings, interviews, lunch dates.......the list goes on and on, I was seriously losing my mind.  And after the 2nd time having to wake kids up early to do homework that I overlooked I decided it was time for an intervention.  I had to get our lives all in one place.  Single moms, or any moms for that matter, take note of this.....it has become our command center and is working beautifully!  The kids put their papers for me to look at in the bottom folder for me so I don't have to dig through backpacks.  And our calendar is color coded.


So far it's working flawlessly.  Kevin still has no clue what I am talking about.......He's never seen this kind of organization from me before.  Pretty sure if he walked in and saw it, he'd have a coronary!

With all the firsts we have come across a lot of new people face to face.  Teachers, coaches, other moms, potential employers, classmates, ect....... and to be honest I have not been completely open with them about our situation.....it's just awkward you know?  I can't just lead with, "Hi I'm Nicole and my husband is the only dad who's not here because he's in prison for something that happened a long time ago when he was a completely different person!"  I think it would make everyone a little uncomfortable.  I'm beginning to understand the stigma behind why people hide this.  It's easy for me to sit here at my computer in my PJs and write about our story, but it's quite another to come out in a conversation and give them our testimony (plus I'd need a few hours just to cover the last 3 years).  It's just kind of heavy you know?  Is it bad that I just want to wear a sign that says, "Please read my blog www.whenispeakhisname.blogspot.com so that I can stop being vague about where my husband is?"  It would make my life so much easier!  I've seen this posted so many places and it is so profound! 

You never know what the mom or dad that you meet at t-ball practice, or at the room-mom meeting, or at the gymnastics class, or anywhere for that matter is facing at home on a daily basis.  We're all walking a different path....some are harder than others and some are for a season while others are life long.  We all have hills and valleys.  Being open enough for people to feel comfortable sharing their stories with me is something I pride myself in.  Take the time to be kind to someone today......you may be the one person they choose to let in.....and when people let you in, you have to opportunity to share with them.  I share how Christ has changed my life and how leaning on Him and Him alone can lift burdens and set captives free!  I challenge you to be that kind of light today.

I start my new job on Monday as a loan officer.  (Insert shameless plug:  If you live in Texas and are looking to buy a home or refinance your mortgage I'm your girl!  Seriously please contact me!)  Monday is my 30th birthday as well.  It's another day that I never thought I'd spend without Kevin.  In fact I had to call and order my own birthday cake today.  Our tradition is that you can have whatever you want for breakfast on your birthday and I always pick cake :)  I may not have Kevin this year but on the up side I have hair! :)
This was my last birthday.
  
It's funny how when you've survived cancer every birthday means so much more.  And this next weekend we're going to see Kevin so Happy Birthday to me! :)










Thursday, July 19, 2012

Chemo- Round 1 goes to Me!

So you hear the word chemo and you cringe.  I always go back to the scene in the movie, Stepmom, with Julia Roberts and Susan Sarandon, where the mom (Susan Sarandon) is carrying the laundry basket and has to drop it to run and puke.  Then she has to call and have the "step-mom" (Julia Roberts) to pick up her kids.  Then out of frustration she throws the phone and then the laundry.  It is literally poison running through your body attempting to kill everything it possibly can.


So the day we anticipated for months comes.....Kevin and I are driving to the clinic and this song makes us both burst into tears.  The lyric, "Then You look at this prisoner and say to me "son
Stop fighting a fight it's already been won"  I am redeemed, You set me free!" just rang so true for me. 


I had to remind myself to stop preparing for a fight.  It's funny to me that chemo schedules are referred to as rounds.  You say "round one"......you think boxing, fighting, gloves, big sweaty men.....eww kinda gross lol.  Or I get these pictures in my head that are specific to breast cancer that say "Fight like a girl" with the pink boxing gloves (not so gross).  There is a fight going on, but it's not what we think......this is what my Life Manual says:


So there are battles going on but if we can just remember that Jesus ALREADY WON!  I mean seriously how amazing is that.

Ok more about that in a minute with my ADD self.  We made it to the clinic, joined together in prayer, and headed on in.  So on July 2, 2012 I was administered round one of TAC (which stands for the 3 drugs that I am given: taxotere, adriamycin and cyclophosphamide).  It was nice and peaceful and quiet in the infusion room.....as all the old people around me were napping lol.


And they give you warm blankets.....ohhhh how I love a toasty blanket!  So I just relaxed and listened to some praise music and caught up on some tv.....the internet is a wonderful thing when used to defeat boredom!  I even got a foot rub out of the whole deal.....notice the look on Kevin's face! hehe!


He's so funny, and I just love his heart!  The nurse came over as we were finishing up and told me that I would be very nauseated and would have some vomiting going on the next couple of days, so to make sure and take the anti-nausea medicine they gave me.  And my precious husband looked her square in the face and said, "Nope she won't won't have that, in Jesus name!"  The nurse looked a little confused and said, "Um ok well if she does...."  Kevin again interjected, "She won't!"  The nurse looked at me, and I smiled politely at her. "Ok, well you are ready to go." she said in defeat I guess.  1 Cor. 1:18 says, "The message of the cross is foolish to those who are headed for destruction! But we who are being saved know it is the very power of God."  And that has never been more evident to me!  We went and ate a huge lunch at P.F. Changs (oh so yummy) and I went home and now over 2 weeks later, I have not vomited one time!  I haven't even felt like throwing up! Praise Jesus!  See that's what God does! 

Now I'm not going to pretend like it has been all bunny rabbits and sunshine....not sure why I say bunny rabbits b/c we've had them before and while they are super sweet and cute they are really messy and poop A LOT, but you get where I am going.  I have been tired and achy which = grumpy for me.  I had a fever one week after my treatment and ended up back at the doctor.  But again my husband kept telling me I was healed.  And I'm not going to lie.....I felt like throwing something really hard at him!  But that's why God put us together, because when my faith is weak his is strong and vice versa!  I went in expecting my white blood cell count to be super low and end up in the hospital, but the nurse came back in and was confused since my counts were still in the normal range, which is not at all "normal" for a chemo patient.  She chalked it up to me being so young, but I know that is my God!  I love being the patient that confuses medical professionals.  Modern day miracles are still going on all around us and our heads try to explain them away, but God is they only explanation!  Come on people open your eyes and hearts and stop trying to reason God's miracles away! 

Around the end of week 2 my hair started to fall out......first just a little, which honestly made my hair more manageable since I have so much of it.  I had already decided that I wanted to shave it when it started getting out of control.  This to me was not at all an emotional thing.  I am not defined by what I look like, whether or not I have breasts or hair, or legs or arms, or anything else for that matter.  I know who I am in Christ.

And secretly I am one of those weird girls who looked at Demi Moore and Natalie Portman and said, "Man I wish I could do that!"  So once the shedding began I was ready!




So off came the ponytail!


And Here was the final result and I love it!


And with that I challenged my brother with the task of coming up with the best bald jokes he had and here is what I got:

Here you go Nicole Jasien. I love you.

TOP 10 REASONS CHEMO-INDUCED BALDNESS IS AWESOME>

#10: Blond jokes no longer apply to you.
#9: Increased aerodynamics. (important for runners, sky divers, swimmers human projectiles)
#8: You can finally drive your convertible to work. (no more 'wind-tunnel' hair-dos)
#7: You've got a blank canvas for new tattoos.
#6: You're now ready to audition for the Blue Man Group.
#5: Time to get a new driver's license...Hair Color: Invisible. (see how that one goes over with the cop the next time you're pulled over)
#4: Think of the money you'll save...no more barber/hairdresser, shampoo, hairspray, dandruff medication, hair dye, etc.
#3: Everyone knows that bald people make better lovers. (and if they don't, perhaps it's time that you showed them)
(That one was for Big Kev)
#2: It distracts attention from your face. (alright, that was completely uncalled for and I'm sorry)

And the #1 reason that chemo-induced baldness is awesome-

BALD=SEXY (just look at Bruce Willis, Vin Diesel, Natalie Portman and Britney Spears...ok, she's hot in a bald and crazy kind of way)